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Canadian Best Practice Guidance for Quality Community Supports and Care for Adults with Intellectual and Developmental Disabilities and Dementia and Their Caregivers

Online Survey

Invitation to participate


We are inviting you to participate in an online survey, which is being distributed to organizations/services working in Disability, Health, and Seniors sectors in the four provinces of British Columbia, Saskatchewan, Manitoba, and Ontario.

The survey is part of a larger research study conducted by The National Task Group (NTG) Canada Consortium and Reena. We are aiming to survey organizations who currently offer, or anticipate offering, supports or services to aging adults with intellectual and developmental disabilities (IDD) who may be experiencing dementia. This short online survey involves answering a series of questions and will take approximately 30 minutes to complete.

Purpose of this survey

To collect information on what guides the dementia-related practice of organizations in four Canadian provinces (British Columbia, Manitoba, Ontario, and Saskatchewan) who are currently providing or anticipate providing supports or services to individuals with IDD living in the community who may be experiencing dementia.

The survey is funded by the Public Health Agency of Canada, Dementia Strategy Fund. This project has been approved by the University of Manitoba Health Research Ethics Board.
For questions or concerns about the research ethics of this study, please contact the ethics office at University of Manitoba (bannreb@umanitoba.ca; (204 789-3255). 

Participation is:

Voluntary.  You make the decision whether or not to participate.  If you start the  and change your mind, you can quit the survey at any time before clicking on the “submit” button. If you quit, your information will not be saved. Incomplete surveys will be discarded.  

Confidential.   No personally identifiable data will be collected. We will not be able to track your survey submission to your email address. All of your responses will be held in confidence.
Only members of the research team will have access to the survey data. Once the survey is complete, your answers will be combined with others, and presented in a summary report.  The survey data, and related documents will be held for 1 year after the survey has closed to participation in a secure location by the lead member of the research team.

Beneficial.  The survey findings will inform the development of guidance documents to support the practice of organizations mandated to provide supports or services to Canadians with IDD  living in the community who may be experiencing dementia. This information will also help us develop learning and information sessions about dementia as it affects adults with IDD to improve the care provided. 

Risk. There is no risk or harm in participating in this survey above what you would experience in everyday life. On average, the survey will take 30 minutes of your time.


Fill in the Survey

Note:

1. Please share broadly with colleagues or committees you feel would be interested in this topic. In asking to pass along the invitation, our apologies for duplicate email invitations you may receive about the survey.

2. Please complete only one survey per organization/service.

3. Please complete the survey within two weeks from receiving it.



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